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Abstract(s)
A par do envelhecimento populacional tem-se assistido a um aumento dos casos de demĂȘncia, cujos cuidados domiciliĂĄrios recaem sobretudo em familiares. Neste estudo â âRetrato social dos cuidadores informais das pessoas com demĂȘnciaâ â foi formulado o seguinte problema de investigação: Qual Ă© a realidade social dos cuidadores informais (CIs) de uma pessoa com demĂȘncia (PcD) residente na cidade de Bragança? Teceram-se como objetivos: identificar o perfil sociodemogrĂĄfico dos CIs; caracterizar as circunstĂąncias em que ocorre a prestação de cuidados informais; analisar o impacto positivo (benefĂcios percecionados) e negativos (perceção de sobrecarga) pelos CIs no desempenho dos seus papĂ©is; conhecer as necessidades percebidas pelos CIs e a conhecer a rede social pessoal dos CIs. A investigação apoia-se num estudo transversal e descritivo de natureza quantitativa, tendo como participantes 30 CIs de uma PcD residente no domicĂlio na cidade de Bragança. Foram utilizados como instrumentos de recolha de dados um questionĂĄrio, a Escala de Barthel (AraĂșjo, Ribeiro, Oliveira, & Pinto, 2007), o Ăndice de Lawton e Brody (AraĂșjo, Pais-Ribeiro, Oliveira, Pinto & Martins, 2008) e a Escala de Sobrecarga (Sequeira, 2007). Conclui-se que os CIs sĂŁo, na sua maioria, do gĂ©nero feminino, descendentes ou cĂŽnjuges da PcD, com elevadas qualificaçÔes acadĂ©micas e a exercer uma atividade profissional. Nenhuma PcD vive exclusivamente a cargo da famĂlia, embora a grande maioria coabite com os CIs. Constata-se ainda que os cuidados sĂŁo prestados essencialmente de forma permanente e prolongada e centrados nas tarefas pessoais e instrumentais. Os CIs destacam vĂĄrios aspetos positivos da tarefa de cuidar, apesar dos nĂveis de sobrecarga intensa percebidos pela maioria, associados com a coabitação com o familiar com demĂȘncia. Ă evidente um sentimento de insuficiĂȘncia quanto aos serviços de apoio Ă PcD e ao cuidador, bem como a dificuldade em lidar com os sintomas psicolĂłgicos e comportamentais da demĂȘncia. TambĂ©m se verifica o predomĂnio de uma rede social dos CIs de tamanho mĂ©dio no cĂrculo interior, sendo as principais fontes de apoio os familiares, seguidos dos vizinhos e tĂ©cnicos das ĂĄreas da saĂșde e social. Este apoio Ă© percebido como muito satisfatĂłrio. Perante estes resultados tecem-se reflexĂ”es sobre o papel do Educador Social na intervenção com os CIs.
Besides the population ageing itÂŽs been attending an increasing of the dementia cases whose household cares relapse mainly in familiars. In this study â âSocial portrait of informal caregivers of a person with of dementiaâ â it was formulated the following problem of investigation: Which is the social reality of the informal caregivers (ICs) of a person with dementia (PwD) in the city of Bragança? The objectives were: to identify the sociodemographic profile of the ICs; to characterize the circumstances in which the informal care provision occurs; to analyse the positive impact (perceived benefits) and negatives (perceived burden) by the ICs in their roles performances; to know the needs perceived by the ICs and to know the personal social network of the of the ICs. The investigation is based on a descriptive and transversal study of quantitative evaluation, having as participants 30 ICs of a PwD resident in the household in the city of Bragança. A questionnaire, the Barthel Scale (AraĂșjo, Ribeiro, Oliveira, & Pinto, 2007), the Lawton and Brody Index (AraĂșjo, Pais-Ribeiro, Oliveira, Pinto & Martins, 2008) and the Caregiver Burden Scale (Sequeira, 2007) were used as data collection instruments. It is concluded that the ICs are mostly female, descendants or partners of the PwD, with high academic qualifications and developing a professional activity. None of the PwD lives exclusively on the family charge, although the great majority live together with the ICs. Also, cares are essentially on a permanent and long-term basis and focused on personal and instrumental tasks. ICs highlight several positive aspects of the task of caregiving, despite the intense burden levels perceived by the majority, associated with the cohabitation with the relative with dementia. It is evident a sense of inadequacy of the support services for the PwD and the caregiver, as well as the difficulty in dealing with the psychological and behavioural symptoms of dementia. It is also noted the predominance of a social network of the ICs of a medium size in the inner circle, being the principal sources of support of the family members, followed by neighbours and health and social technicians. This support is perceived as very satisfactory. In the light of these results reflections are considered by the role of the Social Educator in the intervention with the ICs.
Besides the population ageing itÂŽs been attending an increasing of the dementia cases whose household cares relapse mainly in familiars. In this study â âSocial portrait of informal caregivers of a person with of dementiaâ â it was formulated the following problem of investigation: Which is the social reality of the informal caregivers (ICs) of a person with dementia (PwD) in the city of Bragança? The objectives were: to identify the sociodemographic profile of the ICs; to characterize the circumstances in which the informal care provision occurs; to analyse the positive impact (perceived benefits) and negatives (perceived burden) by the ICs in their roles performances; to know the needs perceived by the ICs and to know the personal social network of the of the ICs. The investigation is based on a descriptive and transversal study of quantitative evaluation, having as participants 30 ICs of a PwD resident in the household in the city of Bragança. A questionnaire, the Barthel Scale (AraĂșjo, Ribeiro, Oliveira, & Pinto, 2007), the Lawton and Brody Index (AraĂșjo, Pais-Ribeiro, Oliveira, Pinto & Martins, 2008) and the Caregiver Burden Scale (Sequeira, 2007) were used as data collection instruments. It is concluded that the ICs are mostly female, descendants or partners of the PwD, with high academic qualifications and developing a professional activity. None of the PwD lives exclusively on the family charge, although the great majority live together with the ICs. Also, cares are essentially on a permanent and long-term basis and focused on personal and instrumental tasks. ICs highlight several positive aspects of the task of caregiving, despite the intense burden levels perceived by the majority, associated with the cohabitation with the relative with dementia. It is evident a sense of inadequacy of the support services for the PwD and the caregiver, as well as the difficulty in dealing with the psychological and behavioural symptoms of dementia. It is also noted the predominance of a social network of the ICs of a medium size in the inner circle, being the principal sources of support of the family members, followed by neighbours and health and social technicians. This support is perceived as very satisfactory. In the light of these results reflections are considered by the role of the Social Educator in the intervention with the ICs.
Description
Keywords
Cuidador informal Pessoa com demĂȘncia Perfil Redes de suporte social Educação social